Acoustic Neuroma Association
The Acoustic Neuroma Association (ANA) is a patient member organization, providing information and support to persons diagnosed with or treated for acoustic neuroma and other benign tumors of the cranial nerves. The Acoustic Neuroma Association publishes a quarterly newsletter, distributes patient information booklets, presents a biennial national symposium, provides access to a network of local support groups and maintains this website for patient information and discussion.
American Physical Therapy Association
The American Physical Therapy Association (APTA) is an individual membership professional organization representing more than 77,000 member physical therapists (PTs), physical therapy assistants (PTAs), and students of physical therapy. APTA seeks to improve the health and quality of life of individuals in society by advancing physical therapist practice, education, and research, and by increasing the awareness and understanding of physical therapy’s role in the nation’s health care system.
The above link is to the Bell’s Palsy Information site. The intent of this website is to provide a general background about Bell’s palsy, and to help define areas the reader may choose to further investigate. It is based on extensive research, but the timeliness and accuracy of information obtained cannot be guaranteed. The site is not an attempt to practice medicine. It can not used as a substitute for medical diagnosis or treatment, nor should this information override any decisions made with a qualified health care provider. All readers are strongly advised to consult with a qualified health care professional.
The Sir Charles Bell Society (SCBS) is a non-profit multidisciplinary medical organization founded in 1992 in Cologne. The intent of the SCBS is to concentrate knowledge and to present a platform of exchange for all people and professions dealing with facial nerve problems. It is dedicated to the collection, dissemination, and the interchange of ideas relating to the facial nerve, thus furthering cooperation and encouraging global friendship to improve the quality of care delivere to facial palsy patients.
Botox (Temporary Chemo-Denervation of Muscle)
The above link is to Pub Med. This page contains information regarding how Botox should be used and precautions that should be taken.
Allergen– Clinical use of BOTOX® (onabotulinumtoxinA) is the result of more than 100 years of study into botulinum toxin type A. BOTOX® is one of the world’s most versatile and widely-researched medicines with approximately 2000 publications in peer-reviewed scientific and medical journals.
BOTOX® is a purified protein that works by blocking overactive nerve impulses that trigger excessive muscle contractions or glandular activity. The effect is temporary and lasts from approximately one to six months, depending on the individual patient and indication. BOTOX® therapy should only be administered by a trained and qualified physician.
The site above includes a nice animation video. The signals that cause pain and muscle spasms are sent to the muscles through the nerves. BOTOX® neurotoxin blocks the signals that cause muscle spasms directly in the affected muscles, resulting in relief. Similarly, BOTOX® is thought to block the signals that cause neck pain associated with cervical dystonia. The exact way BOTOX® works to reduce neck pain is unknown.
This video describes some of the clinical uses of Botox and shows actual footage of the injection of Botox into an individual’s face.
American Optometeric Association– Dry eye is a condition in which there are insufficient tears to lubricate and nourish the eye. Tears are necessary for maintaining the health of the front surface of the eye and for providing clear vision. People with dry eyes either do not produce enough tears or have a poor quality of tears. This is frequently a problem for individuals sustaining injury to the facial nerve.
Mayo Clinic– Dry eyes occur when your tears aren’t able to provide adequate moisture for your eyes. Tears can be inadequate for many reasons. For example, dry eyes may occur if you don’t produce enough tears or if you produce poor-quality tears– such as when injury has occurred to the facial nerve.
Web MD– Treatment for dry mouth depends on what is causing the problem. Generally, treatment of a dry mouth focuses on three areas . . .
Mayo Clinic– Dry mouth is a condition in which your mouth is unusually dry. Dry mouth is a common problem that may seem little more than a nuisance. But a dry mouth can affect both your enjoyment of food and the health of your teeth. The medical term for dry mouth is xerostomia (zeer-o-STO-me-uh).
Facial Reanimation Overview Article
Facial paralysis severely hinders mastication, speech production, and eye protection. Numerous reanimation techniques are available to restore function and are based on the cause of the facial paralysis, type of injury and its location, and the anticipated duration . . .
National Institute of Neurological Disorders & Stroke (NIH)– Melkersson-Rosenthal syndrome is a rare neurological disorder characterized by recurring facial paralysis, swelling of the face and lips (usually the upper lip), and the development of folds and furrows in the tongue. Onset is in childhood or early adolescence.
The mission of the Moebius Syndrome Foundation is to provide information and support to individuals with Moebius syndrome and their families, promote greater awareness and understanding of Moebius syndrome, and to advocate for scientific research to advance the diagnosis and treatment of Moebius syndrome and its associated conditions.
National Institute of Neurological Disorders & Stroke (NIH)– Moebius syndrome is a rare birth defect caused by the absence or underdevelopment of the 6th and 7th cranial nerves, which control eye movements and facial expression. Many of the other cranial nerves may also be affected, including the 3rd, 5th, 8th, 9th, 11th and 12th.
Neurofibromatosis Type 2
Neurofibromatosis Type 2 (NF2) is a genetic disorder that strikes every 1 in 25,000 people. It can be inherited or spontaneous and does not discriminate based on race, sex or even environment. While the disorder is not completely rare, it is rare enough that the average person with NF2 may encounter few, if any, other people with NF2 in their lifetime.
The NF2 Crew was formed to address this issue, members correspond with and meet other others with NF2 from around the globe. A most often heard phrase from new members ls, “I didn’t think anyone else was like me, I fit in here!” We exchange everything from information on treatments and research to trivia and jokes. One of our goals is accessibility and we offer a variety of Internet-based communication mediums.
The Mission of the American Tiinitus Association is to cure tinnitus through the development of resources that advance tinnitus research.
The Tinnitus Archive is a resource that provides quantitative information about clinically-significant tinnitus (ringing or other noises in the ears or head). It deals exclusively with subjective tinnitus (that is, tinnitus that can only be heard by the person experiencing it). Readers are referred elsewhere for information on objective tinnitus.
The Tinnitus Archive contains statistical summaries concerning the characteristics of clinically-significant, subjective tinnitus in a large group of tinnitus patients. The subjects whose data are summarized in the Archive are drawn from the Tinnitus Data Registry, a research database maintained by the Oregon Hearing Research Center, Department of Otolaryngology, Oregon Health & Science University. The Registry was set up specifically to study tinnitus.
All members receive an information packet with the first year of membership, discounts on purchases, and a subscription to VEDA’s quarterly newsletter, On the Level, which provides up-to-date information on topics such as diagnosis, treatment, research, and coping strategies.
Basic members have the option of using our support resources to communicate directly with others who understand firsthand the stages of seeking a diagnosis, finding effective treatment, and managing the profound personal impacts of a vestibular disorder.